Projects

Providing direct therapy is one of my favorite activities. However, I know that there are lots of different levels of need, and part of my mission is to be available to patients and to others in need in as many ways as I can. One way that I do this is by writing the blog that you can find here.

I also have several other projects that I participate in as a way to contribute back to the community, continue my own education, and try to make the world a little bit better. If you’re curious about those, here is where else you can find me online:

    • Co-Founding and Moderating the #EOLchat Tweetchat. The goal of this hashtag, and the weekly Tweetchat I moderate, is to change the conversations that we have in our families and communities about end of life issues. This is a tough topic, and it often raises a fair amount of fear. However, what we’re learning is that when we talk about what scares us, we’re better able to face it. Ultimately, our goal is to contribute to more and better conversations about end of life wishes long before families are facing a health crisis.
    • Participating in the #BCSM (Breast Cancer and Social Media) Tweetchat as a guest expert on emotional health after a cancer diagnosis. Here’s a great summary from USA Today writer Liz Szabo of the work that the #BCSM Community has done. The #BCSM community was also mentioned in Forbes as a model of patient engagement.
    • Serving as a mental health support and resource to patient communities. For example, I contributed to this article on helping parents support teens who have been newly diagnosed with Type I Diabetes.
    • Actively supporting the Partnership WITH Patients–an initiative based on the idea that patients should always have a voice in the conversation and a seat at the table in healthcare decision-making. The first PWP Summit was held in Kansas City in September 2012, and I was able to participate.
    • Becoming a member of The Walking Gallery of Healthcare. This amazing project tells patient stories and empowers patients to be able to advocate for their own best care. Learn more about it here:
    • Serving as a community mental health resource. Most recently, I worked with a community panel to discuss the issue of domestic violence after a high-profile murder-suicide.
  • Contributing answers to questions from breast cancer patients and survivors as a guest expert at Talk About Health. I appreciate Talk About Health because the site moderators check the credentials of every guest expert, so site participants can trust that they are getting sound, safe answers to their questions.
  • Every once in a while, I let my brain rest by finding some inspiration and collecting it on my Pinterest board. If you want to see what inspires me, you can check it out here.
  • Participating with the visionary, passionate #OccupyHealthcare team. This is a group of professionals who believe that our health care system can be better and more health-supporting than it is now. I’m proud to donate my time and my voice to support that effort.

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